The study is co-ordinated by an experienced group of researchers with medical, scientific and patient backgrounds. It includes a local patient, public involvement and engagement group, and a clinical advisory group.
We have a group of experienced clinicians, academics and people from relevant national charities who are members of our Study Steering Committee. They meet on a regular basis, provide guidance to the study team and provide overall supervision of the study to ensure that the study is conducted to high standards.
Chief Investigator
Professor Adam Glaser, Professor of Oncology and Late Effects Epidemiology, University of Leeds
Principal Investigator
Professor Richard Feltbower, Professor of Paediatric Epidemiology, University of Leeds
Co-Investigators
- Dr Beki James, Consultant Paediatric Haematologist, Leeds Teaching Hospitals NHS Trust
- Dr Mike Richards, Consultant Paediatric Haematologist, Leeds Teaching Hospitals NHS Trust
- Dr Jacob Grinfeld, Consultant Paediatric Haematologist, Leeds Teaching Hospitals NHS Trust
- Dr Kate Absolom, University Academic Fellow, University of Leeds
- Dr Ruben Mujica-Mota, Associate Professor of Health Economics, University of Leeds
- Dr Khalid Ahmed, Clinical Fellow Haematology, Sheffield Teaching Hospitals NHS Foundation Trust
- Thuvia Flannery, Project Manager, University of Leeds
- Ivana Holloway, Senior Research Statistician, University of Leeds
- Sam Mason, Researcher, University of Leeds
Regional Collaborators
Bradford
Dr Sally Pollard, Lead Clinician Bradford (Paediatrics), Bradford Royal Infirmary
Manchester
Dr John Grainger, Consultant Paediatric Haematologist, Clinical Lead for Haemoglobinopathy, Royal Manchester Children’s Hospital
Newcastle upon Tyne
Dr Andrew Fletcher, Consultant Paediatric Haematologist, Great North Childre’s Hospital, Newcastle upon Tyne
Sheffield
Dr Emma Astwood, Consultant Paediatric Haematologist, NEY Paediatric HCC Lead, Sheffield Children’s Hospital
Participating Centres
Leeds Teaching Hospitals NHS Trust
- Dr Quentin Hill, Consultant Haematologist
- Dr Michelle Kwok-Williams, Consultant Late Effects
- Dr Robert Murray, Consultant Endocrinologist
Sheffield Teaching Hospital Foundation NHS Foundation Trust
- Dr Clare Samuelson, Consultant Haematologist
- Professor Diana Greenfield, Consultant Late Effects
Manchester University Foundation NHS Trust
- Dr Nandini Sadavisam, Consultant Haematologist
- Dr Joe Sharif, Consultant Haematologist
- Dr Fiona Dignan, Consultant Late Effects
Bradford Teaching Hospitals NHS Foundation Trust
- Dr Sam Ackroyd, Consultant Haematologist
Newcastle Hospitals Foundation NHS Trust
- Dr Brigit Greystoke, Consultant Haematologist
Liverpool University Hospitals Foundation NHS Trust
- Dr David Simcox, Consultant Haematologist